Wish eligibility

These illnesses are eligible for a wish

• 3rd degree burns more than 50% body surface
• 3rd degree burns between 10% and 50% area when this concerns the face and / or hands

These illnesses are NOT eligible for a wish

• 3rd degree burns less than 10% body surface area

These illnesses are eligible for a wish

• Cardiomyopathy
• Congestive Heart Failure
• Primary Pulmonary hypertension
• Chronic pulmonary hypertension if it can lead to a reduction in life expectancy
• Congenital heart defect with heart failure or ongoing cyanosis
• Requirements mixer syndrome
• Arrhythmias that require an internal defibrillator
• Hypoplastic left heart
• Hypoplastic right heart
• Heart transplantation. Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• ICD (internal defibrillator)
• Moyamoya disease
• Tetralogy of Fallot

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Systemic scleroderma
• Epidermolysis Bullosa (major blistering disease): severe form that can lead to a reduction in life expectancy

These illnesses are NOT eligible for a wish

• Local Sclerodermaa
• Epidermolysis bullosa (large blister disease): mild form that does not lead to a limitation of life expectancy
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Bile duct attack
• Short Bowel
• Liver transplant. Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• Pancreas transplant. Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• Bowel transplant. Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• TPV (Total Parenteral Nutrition)
• Congenital Biliary Atresia
• End stage liver failure, post infectious toxic or vascular
• Chron’s Disease

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Alexander disease
• DI George Syndrome
• Prader Willi Syndrome
• Barth syndrome
• Rett syndrome

Congenital anomaly, chromosomal, or single gene condition with associated life-threatening complications such as:

• Intractable seizures
• Structural upper airway abnormalities or chronic pulmonary symptoms
• Heart anomalies meeting cardiology guidance
• Chronic renal failure
• Associated major gastrointestinal dysfunctions
• Skeletal Dysplasias or dysostoses with chronic or degenerative pulmonary complications
• Trisomy 13 (Patau syndrome) and 18 (Edwards syndrome)

These illnesses are eligible for a wish

• Progressive diseases where there is a real threat of treatment by chemo or bone marrow transplantation
• Bone marrow transplantation: Preferably register before transplantation. If this is not possible, you can register up to one year after bone marrow transplantation
• Thalassemia major
• MDS (Myelodysplastic Syndrome)
• Sickle cell disease
• Chronic Congenital Hypoplastic Anaemia
• Aplastic Anaemia (Fanconi’s & Idiopathic)
• Severe Agranulocytosis

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible

These illnesses are eligible for a wish

• Immune deficiency if bone marrow transplantation is necessary
• Bone marrow transplantation: Preferably register before transplantation. If this is not possible, you can register up to one year after bone marrow transplantation
• Auto-inflammatory conditions (eg S-JIA) if these cannot be controlled with regular medication
• Juvenile dermatomyositis provided that it can lead to a limitation of life expectancy
• Mixed Connective Tissue Disease (MCTD) if it can lead to a limitation of life expectancy
• Systemic Lupus Erythematosus (SLE) if it can lead to a reduction in life expectancy
• Systemic scleroderma
• Vasculitis: the serious form, eg Wegener's disease
• Acquired immunodeficiency syndrome (AIDS)
• ARC
• Congenital Immune Deficiencies requiring bone marrow transplant or limitations in life span

These illnesses are NOT eligible for a wish

• Auto-inflammatory disorders well responsive to regular medication
• Local scleroderma
• Vasculitis transient form (eg Hennoch-Schonlein and Kawasaki)
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• End stage Renal Failure
• Long-term dialysis
• Nephrotic syndrome metals due to renal insufficiency
• Kidney transplant. Preferably register before transplantation. If this is not possible, it can also be done after transplantation

These illnesses are NOT eligible for a wish

• Temporary dialysis to bridge the gap until denier has recovered
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible

These illnesses are eligible for a wish

• Progressive or degenerative neurological disorders
• Progressive or degenerative myopathy
• Congential muscular Dystrophy
• Duchenne Muscular Dystrophy
• Epilepsy, if there is an indication for epilepsy surgery and / or if there are frequent major seizures despite drug treatment.
• Lennox Gastaut syndrome
• Dravet Syndrome
• Myoclonic Encephalopathy
• Ataxia Teleangiectasia
• Friedreichs ataxia
• All brain and spine tumors, both good and malignant
• Aicardi Syndrome
• Degenerative Grey Matter Disease
• Werdnig-Hoffmann Disease
• Batten disease
• Quadriplegic Cerebral Palsy
• Cerebral Palsy with Seizures
• Spinal muscular atrophy

These illnesses are NOT eligible for a wish

• Spina bifida (without complications that limit life expectancy)
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.
• Autism
• Global Development Delay
• Mental Health

These illnesses are eligible for a wish

• All oncology, if pending or registered within 1 year after the last treatment
• Bone marrow transplantation: Preferably register before transplantation. If this is not possible, you can register up to one year after bone marrow transplantation
• Recklinghausen disease with malignant behaviour
• Malignant Bone Tumours & Soft Tissue Sarcomas
• Non - Hodgkins lymphoma
• Hodgkin’s lymphoma
• Metastatic solid tumours
• Acute Lymphoblastic Leukaemia (ALL)
• Acute Myelogenous Leukaemia (AML)
• Acute Nonlymphocytic Leukaemia (ANLL)
• Chronic Myelogenous Leukaemia (CML)
• Malignant bone tumours, soft tissue sarcomas
• Wilms Tumour
• Brain stem tumours
• Malignant brain tumours
• Metastatic solid tumours

These illnesses are NOT eligible for a wish

• Oncological patients longer than 1 year after the last treatment

These illnesses are eligible for a wish

• Complicated, severe bronchiectasia
• Cystic Fibrosis
• Lung transplantation. Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• Chronic lung disease

These illnesses are NOT eligible for a wish

• Asthma

These illnesses are eligible for a wish

• Progressive metabolic disease if it can lead to a reduction in life expectancy
• Cystinosis
• Hunter Syndrome
• Hurler Syndrome
• Leigh Syndrome
• Sanfilippo's Syndrome
• Systemic Sclerosis
• Cystinosis Niemann-Pick Disease
• Gaucher’s Disease
• Any with severe progressive Neurological involvement

These illnesses are NOT eligible for a wish

• Metabolic diseases that are not progressive and do not limit life expectancy
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible
• Type 1 diabetes

These illnesses are eligible for a wish

• All transplant patients (except skin and corneal transplant)
• Preferably register before transplantation. If this is not possible, it can also be done after transplantation
• Bone marrow and stem cell transplantation. Preferably register before transplantation. If this is not possible, registration is possible up to one year after transplantation

These illnesses are NOT eligible for a wish

• Skin and corneal transplantation

These illnesses are eligible for a wish

• Children with a condition that can lead to a limitation of life expectancy, for example:
• 24 hour ventilation
• TPV (Total Parenteral Nutrition)
• ICD

These illnesses are NOT eligible for a wish

• Allergy that may involve an anaphylactic reaction
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible